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Cystic Fibrosis Trust


We're bringing together the cystic fibrosis (CF) community, people involved in CF care, researchers and others with an interest in CF for a series of online events. Find out more about CF LIVE and register for the next event.

Through CF LIVE, expert panels will share the latest information and updates from the world of cystic fibrosis. We’ll cover a wide range of subjects and you’ll have the opportunity to be part of the discussion by submitting questions.

Next event: ‘Work and money – know your rights’

Wednesday 23 September 2020, 7pm

We know personal finances can be a key concern for the CF community and for many, COVID-19 and shielding have meant extra worries about jobs and changes to income. Hear from our expert panel as they support adults with CF to understand their employment rights, maximise their income and navigate the benefits system. Register to reserve your place.

Register now 

Save the date for future events* 

  • Wednesday 7 October, 7pm – 'How we're working to beat antimicrobial resistance (AMR) in cystic fibrosis' – Register now
  • Wednesday 4 November, 7pm – 'Clinical trials: how you can shape the future of CF medicine' – Register now
  • Wednesday 2 December, 7pm – details coming soon

*We will try to stick to the dates advertised; however, on occasion some dates may change, through reasons beyond our control.

For more information, or if there’s a theme that you’d like us to cover at a future CF LIVE, email:

Watch recordings of previous events

19 August 2020 – 'Returning and settling back into education – Our expert panel answered some of your questions about going back to school and discussed the support available. Watch the recording.

Watch now

5 August 2020 – ‘How your data makes a difference’ – Our Registry team spoke about the importance of your data and how it helps us improve the lives of people with cystic fibrosis. Watch the recording.

8 July 2020 – Kaftrio Community Event – David Ramsden, our Chief Executive, and Dr Keith Brownlee, Director of Policy, Programmes and Support, chaired a live virtual community event about the latest updates on Kaftrio. Watch the recording.

Research we fund

We fund research to tackle some of the most pressing issues in CF today. Find out how your donations are making a difference.

What is CF?

Cystic fibrosis, or CF, affects the lungs, digestive system and other organs, and there are around 10,500 people living with it in the UK.

Contact us

Get in touch with us to speak to someone on our Helpline, find out about an event or speak to our Press Team.